I did not blog last night as I received some input about being too “dark”. Hey, baby, these are not bright skies. Not every day is sweetness and roses. I deal with that and so does Nonni and Grandma Penny. I put my thoughts out because it helps me be a better Leukemia Mom. So … [Read more…]
If you’ve lived any length of time over memory, at some point you were probably “broke”. For me, yes. Both financially and metaphorically. I don’t easily lean on people who have not experienced at least one. I was broke from a young age and truly vowed my children would not experience even a glimpse of what I … [Read more…]
We listen to lullabies. Both Lily and Blaise had music while they slept: Blaise had guitar, Lily, more contemporary stuff. She started with Kanga and Roo (I want Kanga!). I never indulged Ashton with embellished sleep routines. I was tired before he was born. After he was born, I lost my mind, basically, for about … [Read more…]
I wasn’t going to blog tonight. I erase everything I type. I will sum up the day for the sake of memory: Up until the wee hours this morning with a vomiting Ashton. Nurses in and out all night. Kind, sweet, nurturing people. Yucky nurse this morning. She was new( yet, old) and didn’t seem to … [Read more…]
Ashton. He has had one of his best days ever and it’s his last day of Round One. Along with C-diff, he is in isolation. As a five year-old, used-to-be-super-active boy, I am astounded at his acceptance of this. He has been absolutely charming all day, even after he learned I ate his last potato … [Read more…]
Our most exciting moments occur in the night. Come to think of it, that seems to be a trend in my life. Each time I went in to labor it was “the middle of the night.” Never after a good night’s sleep and a hot breakfast. Also, any trouble I’ve ever been in (who, me?) … [Read more…]
My favorite doctor here told me we should pray for a very boring few weeks. So far, so NOT the case. My little boy went ahead and contracted C-diff (as mentioned in another post, he was being tested for it). Thus, lots of poop, crazy fevers and barfing. Mind you, I am not sitting back … [Read more…]
NTP– Supplementary Feeding used to treat malnutrition rates which exceed 15%. Doctor has ordered this after Megase was used to stimulate his appetite unsuccessfully TPA– Tissue Plasminogen Activator is a protein which helps to break down blood clots. His TPA is currently ordered and will hopefully unblock the line so he can receive his Chemo … [Read more…]
I’ve been gazing longingly at a running path outside our hospital window. The only problem I could foresee was getting to it. It just so happens to be across 6 lanes of highway and although I’m a bit cagey in this hospital room, I didn’t think the odds were in my favor to try. Then … [Read more…]
Imagine pouring poison in to your child’s cup and telling him it won’t hurt him. It leaves a Munchausen By Proxy taste in one’s mouth. That’s how I feel about Chemo after today. Give the child poison! It will make him feel better? We are starting to see some signs of wear and tear on … [Read more…]