Real Life

I am hereby concluding that I cannot have a real life. The End.     It’s very difficult on the people around me. My emotions have a range as long as a Texas interstate with no rest stops. I am upbeat, even happy. I can laugh. I can also throw a serious tantrum. I can … [Read more…]


If WE GET A DONOR, WE WILL BE IN GOOD HANDS About Cincinnati Children’s Cincinnati Children’s, a nonprofit academic medical center established in 1883, is one of the oldest and most distinguished pediatric hospitals in the United States. Clinical Services We offer comprehensive clinical services, from treatments for rare and complex conditions to well-child care. … [Read more…]

Ok, So, That Part’s OVER

It was so nice to have the Aunts and Nonni here yesterday at Dayton Children’s again. They kept me distracted and laughing (the three together are an absolute riot) while waiting for Ashton to come out of a quadruple-whammy surgery. It was also wonderful to have Mike here when we went to the ER and to … [Read more…]


I slept on the couch with my contacts in. I woke up at 5, per usual. It’s my time to cry and then pull it together. I am exhausted. I am so afraid. I feel like someone else should be in charge. And then Ashton wakes up around 730 and I see the purpose of … [Read more…]


What is that? Is it something you want to get to? Like my sister’s college graduation? Or her wedding? Is it something you want to happen, like, your small town boy crossing the street? Do you aspire to have your garden grow? Do you aspire to have peace in your life? What are your aspirations. … [Read more…]

Last Post From Home

We saw the BIG DOC today. He smiled, and said one week is long enough to be home. So, they drew labs and we will find out tomorrow if he can stay through the weekend. He is “healthy” (ish) However, he needs another ROUND. Still no donor. As much as I loved room 415, in … [Read more…]

Cincinnati/Bone Marrow We will be going here in about six weeks. I THINK I posted the link correctly. I believe this will happen Or, I failed with upload which I believed was easy peasy. When I think of those East End lights, muggy nights Curtains drawn in the little room downstairs Prima Donna Lord you really … [Read more…]

This Could Be A Long Post

It’s been many days since I’ve written. I really don’t know where to start, so I’m going to write this for Ashton, himself. You, my dear, have had quite a ride. In fact, you rode in a fire truck. There were fields of corn, wheat, rye and soy and country music. Well, there weren’t fields … [Read more…]