After having a very beautiful ceremony with my daughter in Winnetka and spending some funny, funny times with both my older children (back-to-back Simpsons with B.), I am back in Dayton after pulling an all-nighter with my mother. We arrived around 3:15am in order to grab some sleep to be somewhat conscious for my appointment with Dr. Grimley from Cincy. I woke up in a pure sweat, under air conditioning, on the couch per usual. I nearly ripped my watch off my wrist in a panic that I may have slept all day. But it was only seven, so I sort of dunked my head beneath the shower head and washed my face with baby soap. I dragged my garbage cans around the tile saw erected, still, in my garage, gave my lawn mower a dirty look and sped out.
After all that, the doc didn’t even come til noon. I hear this blog is depressing.
Two males are a match for Ashton. Both males went for HLA typing to confirm the match. Neither male has agreed, yet, to be a donor. There are no results, yet, for the KIR match. (incompatibility match)
These matches would be compatible but there is a certain point where we would like the match to be incompatible. Long story with 8% battery and a hungry child.
Many myths were dispelled today. And we were also prepared for the best and the worst. It will not be such a nightmare in Cincy as we thought, provided we keep infection at bay. As Dr. Grimley put it: Dr. Dole has been wiping out 90% of his cells and Cincy will wipe out 100%. Do the math.
We have faith in Science.
But, that’s ok. We got some bittersweet news.
A match? Two matches? This is great! I don’t mean to minimize the tough times ahead, but the prospect of a match is amazing. Hooray!
Dede/H.E.L.P. - Helping Every Little Person
Hi Ashton! You and your mama’s friend, Nora, told me all about you, and gave me your website! Very cool of her to do that, and to be drumming up support for you, as you endure your fight against AML. I know, little guys like yourself aren’t supposed to be getting sick and spending your days in the hospital, but you just concentrate on feeling better!
I am glad Nora told me about you so that I could add you to my prayer list, and also gather some new prayer warriors for you. You know, you can never have too many people in your corner. 🙂 WE are here for you and your family!
I don’t know if you have Facebook, but you can find me there if you do. I am a Childhood Cancer Advocate, and I have a page called H.E.L.P. – Helping Every Little Person! That is where I promote childhood cancer awareness, and gather prayer warriors for all of the little fighters like yourself. WE love our kids, and if there’s anything that we can do to help you, your siblings or mama out, you just let me know. Or, if you can’t let me know, have mama do it for you, okay?
I will be checking in on you to see how things are going. Stay tough and *NEGU*… that means, never ever give up!
Love ya, little man.
Just found this page through facebook. It’s amazing to me how strong you are momma. Your family will always be in my prayers.
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