Lung fallen. I associate leukemia with blood, not lungs. Well, he does not have leukemia right at this very moment in time. Thank you, anonymous bone marrow donor guy. No offense, bone marrow guy, but your cells are not really hitting it off with my guy. I know, I know, it was a blind date without even a … [Read more…]

headlong in to the night

Sorry, ya’ll. whomever is actually following this kooky thing I do. The thing I do less and less ( write, blog, read, live appropriately). I went ahead and ran headlong in to the night. . I would say it was long overdue. I have kept the shit cool, even consoling others. I needed a rescue … [Read more…]

A Cautious Happy Dance

I went away, up North to Chicago to hang with Lily and Blaise. I knew the timing wasn’t ideal, but Blaise in particular will be affected by my absence as he grows older. He feels more than he lets on, as many 11 year-old boys do. Lily is better with expressing herself, and for that … [Read more…]


BMT Day. “Birthday”. Allogeneic Stem Cell Transplant Day. The Day we have been waiting for months for.  The day I built up in my mind as terrifying and it’s actually pretty exciting. When I say the procedure occurs today, I should explain that it actually occurs tomorrow, “either between 12 midnight tonight and 2am tomorrow or between … [Read more…]


If WE GET A DONOR, WE WILL BE IN GOOD HANDS About Cincinnati Children’s Cincinnati Children’s, a nonprofit academic medical center established in 1883, is one of the oldest and most distinguished pediatric hospitals in the United States. Clinical Services We offer comprehensive clinical services, from treatments for rare and complex conditions to well-child care. … [Read more…]

The F Word

Here I am staring, at your perfection in my arms; so beautiful. The sky is getting bright, the stars are burnin’ out. Somebody slow it down. This is way too hard, because I know when the sun comes up I will leave. This is my last glance that will soon be memories. And when the daylight … [Read more…]


It seems like we just got home and now are packing to back to the hospital. There are a few things I despise and most have to do with clothing. (washing, drying, packing, ESPESCIALLY unpacking, buying, fitting, shopping for.) It is 245pm and I got word that Ashton has his bone marrow aspiration #2 tomorrow. … [Read more…]

A, B, C-DiFF, E, F, G…

My favorite doctor here told me we should pray for a very boring few weeks.  So far, so NOT the case. My little boy went ahead and contracted C-diff (as mentioned in another post, he was being tested for it). Thus, lots of poop, crazy fevers and barfing. Mind you, I am not sitting back … [Read more…]