Sleepy Skin

Pale. Circles under eyes. “My skin is sleepy”.  That’s basically both Ashton and me, but he’s the one with the terminal illness. I have Mom-of patient-disease. The medicine he was given is non-addictive and was not expected to have an effect but has clearly done so before the expected three day anticipation. I am not … [Read more…]

Swinging on The Mood Swing

Too bad mood swings don’t come in different colors throughout the day. Ashton’s would be so beautiful. Picture a fireworks display of colors and include the sound of the fireworks. Yesterday, I agreed to put him on a new medication to help him control his need to control. After all, what CAN he control right … [Read more…]

A Beeper Date

What a funny little day this was! It was Blue Dog’s birthday and this may get boring for some of you but in the animal world of stuff, this is very important. ( Now, I will get a comment about how boring this blog is. Get over it.) Blue dog turned three and Ashton and … [Read more…]


Is it hot in here or is it just Ashton? Yeah. We finally tipped over in to sick mode. Not as bad as last time, but he “flirts with fever” and then spikes it over the net right when it’s my turn to go home for a night. Therefore, I feel sufficiently guilty. After all, … [Read more…]

Party in The Playroom

Dr. Dole (pronounced Doh-lay) gave Ashton a hall pass yesterday. As he looks and feels remarkably well, my mom took him outside, which is actually better than inside ANYWHERE in a hospital, if you ask me. She call and asked me to look out the window and wave. There was Ashton running down the sidewalk … [Read more…]

Earnesty and Ellen Degenerous

You can’t get angry with a bald kid with Cancer in leg restraints. Well, I guess you can if they throw their milk at you. And if you retaliate by throwing the milk back? Well, you are immediately taken from the running of Mom-Of -The-Year.  I have seen it happen, and I wont say it was … [Read more…]


Absolute neutrophil count (ANC) is a measure of the number of neutrophil granulocytes[1] (also known as polymorphonuclear cells, PMN’s, polys, granulocytes, segmented neutrophils or segs) present in the blood. Neutrophils are a type of white blood cell that fights against infection. The ANC is calculated from measurements of the total number of white blood cells, … [Read more…]

News From The Couch

  Yes, I got to go come home last night and my eyes are burning because I still wake up at five o’clock regardless. I sleep on the couch because both my head and my heart know it’s only temporary. Nonni stayed with Ashton last night and it’s a good thing. I got to leave … [Read more…]


Some people seem to understand my need to keep the door open. We need to keep the door open as long as possible. We are expecting the ANC to start dropping as this morning was the last chemo for round two. Soon, we will be bound to the room and the bed. Ashton fell twice … [Read more…]